18
7月
2019
|
晚上16:45
美国/芝加哥

库克儿童医疗中心的姑息治疗是什么

作者:Katie Lawrence, CPNP & Kaci Osenga, M.D.

Pediatric Palliative Care (PPC) has been a board certified subspecialty in pediatrics sponsored by the American Board of Pediatrics since 2008. PPC has been a specialty service at Cook Children’s Medical Center (CCMC) since 2007. Palliative care is widely misunderstood by many medical professionals, as well as the general public. While many believe that palliative care is synonymous with end of life care or hospice care, this is not entirely true. Palliative Care is a specialty service that helps care for any child and their family living with serious and potentially life limiting complex chronic conditions. Hospice care is along the continuum of palliative care. All hospice is palliative care, but not all palliative care is hospice. The PC team is grateful to become involved as early as diagnosis and at any time along the disease trajectory including in the midst of therapy with curative intent. The role of the palliative care team is to help with symptom management (caused by disease or treatment), medical decision making and to support families through the uncertainty of serious illness.

CCMC的PPC团队由医生、执业护士、护士、社会工作者和牧师组成。该小组与儿童生活专家和医疗中心提供的其他支持性服务合作。PPC小组与儿童医疗小组一起工作,以减轻儿童和家庭的痛苦。我们不仅处理儿童及其家庭的身体痛苦(疼痛、呼吸短促),还处理心理(焦虑、抑郁)、社会(孤立、经济压力)和精神痛苦。

我们与数百名患有严重、复杂慢性疾病的儿童合作,并沿着疾病发展轨迹,协助提供预见性指导和医疗决策。例如,患有吞咽功能障碍并伴有神经功能损害的儿童的家庭可能面临一个决定,即当拒有其他预防手段,仍继续误吸时,是否要进行胃造口置管。PC团队帮助促进根据疾病轨迹做出明智的决策,希望在危机时刻避免做出关键决策的需要。

如果您有病人,您认为可能受益于姑息治疗服务,您可以直接与我们的护士协调员,执业护士或医生询问问题或进行转诊。我们在住院和门诊都能看到病人。PPC不接收儿童到医院,我们主要不管理患者。我们与初级护理提供者和儿童的其他专家合作,以确保儿童接受的护理与家庭的护理目标一致,我们着眼于整体,而不仅仅是单个系统。

了解库克儿童姑息治疗计划

库克儿童姑息治疗计划专注于减轻身体,情绪和心理痛苦,同时提高我们的病人的生活质量。

您的姑息治疗团队:

  • 促进协作、协调和护理的连续性。
  • 在时间密集的信息和困难的对话中提供指导。
  • 协助召开护理会议和家庭会议。
  • 支持正在做出困难的儿童和家庭。
  • 帮助儿童和家庭建立基于他们的价值观、信仰、偏好、意义框架等的关爱目标。
  • 支持初级护理团队处理令人痛苦的症状。

此外,姑息治疗团队鼓励早期介入(即,在诊断前),这样他们就可以开始与患者的治疗和/或延长生命的治疗相结合。